As Director of the Alzheimer’s Disease Research Center at Washington University, I reluctantly have decided to phase out the Alzheimer List, effective February 1, 2011. I have made this decision based on two factors. First, the use of the list has been steadily declining. In January 2005, there were 1,057 monthly posts to the List, but in May 2010 there only were 175 posts. This declining use possibly reflects the fact that, since the List was originated in 1994, many more resources now are available for families and caregivers of persons affected by Alzheimer’s disease and other dementing disorders. Indeed, many of the current posts to the List do not address caregiver or related issues. Second, for us to support the List requires resources such as personnel, hardware, and maintenance of archives. Although the List is not a major resource burden, in this period of constrained research funding we must manage any expenditures very carefully. We have notified our funding agency, the National Institute on Aging, of our decision to end the List and they are in agreement.
At end of this message, please find links to other online support groups that may be useful for some of you. The publicly accessible archive of all posts to the List will be maintained after February 1, 2011, (i.e., after the List itself is halted) as the archive has proven valuable for several reasons, including for caregiving research.
Finally, I would like to thank all of you who have made the List a vital initiative for sharing and supporting caregiver interests. I also want to recognize Geri Hall for her tremendous contributions to the List over many years; her caring and insightful comments have been of great help to many people and we very gratefully acknowledge her efforts.
Sincerely,
John C. Morris, MD (morrisj@abraxas.wustl.edu)
Alternative Online Support Groups:
Alzheimer’s Association message boards and chat rooms:
http://www.alz.org/apps/we_can_help/support_groups.aspElderCare Online Forum:
http://eldercare.infopop.cc/6/ubb.xAlzheimer's Care Giver Support Group (started by former members of the ADRC Alzheimer List:
http://health.groups.yahoo.com/group/AlzheimerSupport/
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