Showing posts with label End of Life. Show all posts
Showing posts with label End of Life. Show all posts

Sunday, February 20, 2011

The care was futile, and the patient's wishes, KevinMD.com

by Jim deMaine, MD

“We have a patient on a ventilator here who is stable enough to transfer to your ICU, if that’s OK with you.”

This call, coming from the transfer coordinator, is emblematic of an insurance generated “medical care” coverage issue. I am salaried under the patient’s insurance carrier so the insurer wants this patient back under its wing as soon as possible.

The community hospital has been keeping Stella Norris (not her real name), an 89 year old woman, as long as possible. She is incapacitated from a massive stroke suffered five years ago. There is a feeding tube inserted through the stomach wall and she has needed total body care. 911 was called when she stopped breathing and she was taken to the closest hospital.

Click on the "via" link to read the rest of the article.

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Sunday, February 6, 2011

Hospice Under Medicare | Accepting Hospice Under Medicare | Caring.com

Hospice is a type of care that focuses on relieving pain and other suffering for patients nearing the end of life. To qualify for Medicare-covered hospice care, a patient's treating physician must certify that the patient's illness is likely to be terminal within six months. Once hospice care is begun, there's no more medical treatment for the terminal illness itself.

Given this requirement of a prognosis of only six months to live, and the ending of treatment for the terminal disease, many people resist hospice because it seems like "choosing to die." Many people also fear hospice because they believe that all medical care will end. For several reasons, though, neither one of these fears should stop someone from choosing hospice care.

In the first place, the decision to choose hospice isn't final. If a patient's condition stabilizes or improves, he or she can give up hospice and return to regular Medicare coverage. All it takes is to have a change of mind about giving up treatment, or a doctor's advice to try a new treatment. Or for some reason the patient might not like hospice care and prefer to return to regular Medicare coverage. Patients don't have to give Medicare or the hospice provider a reason -- they can end hospice and return to regular Medicare coverage at any time.

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Tuesday, January 18, 2011

Don't Put Off Talking About The Inevitable: Care At Life's End : Shots - Health News Blog : NPR

With no end in sight to the controversy about whether doctors should be paid to discuss end-of-life options with patients, we thought now was as good a time as any to review the possibilities for care before you die.

Only about a quarter of adults have advance directives in place. The term refers to two types of documents: a living will that instructs people what medical measures to take, if any, to prolong your life, and a health care power of attorney that designates someone to make medical decisions for you if you can't. States call these documents by different names, but their functions are similar.

 

On the relatively infrequent occasions when people do sign advance directive documents, they're usually thinking about what they would want in a crisis: a heart attack, say, or routine surgery that goes terribly wrong. Most of us don't think about the long, slow decline that may occur with Alzheimer’s disease, for example, that robs people just as surely of their ability to make choices as a medical emergency.

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Wednesday, January 5, 2011

Helping patients experience death, PhillyBurbs.com:  

A handful of local hospitals recently started volunteer programs that train ordinary people to sit with those who are alone and dying.

Angelo DeLorenzo spends many nights watching people as they die.

Occasionally, the person wants to talk, sometimes through the night. Often, the patient is unconscious, but DeLorenzo reads to him or her, plays the harp or sits quietly and prays.

Everyone deserves a good death, DeLorenzo believes. No one should die without someone there to hold a hand, whisper reassuring words and make sure the person is comfortable.

So DeLorenzo stays with these dying patients at St. Mary Medical Center, where he frequently takes the overnight shift. The Middletown hospital is one of a handful in the area that have started end-of-life programs, where ordinary people such as DeLorenzo, a chaplain intern, are trained to provide comfort care for people who have no close family available.

"No One Dies Alone" - the name of the program at St. Mary - originated at an Oregon hospital in 2001. It has since spread around the world. More than 1,100 hospitals and hospices have requested copies of the program's manual, said Carleen McCornack, coordinator of the mission center of Sacred Heart Medical Center in Eugene, where the program started.

These types of programs will go along way towards easing patients and family members into accepting the death of a loved one.

To read the complete article click on the above link:
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Saturday, January 1, 2011

Discussing cancer treatment with the terminal patient, KevinMD.com

“Are you giving up on me?” My patient looks at me severely. “There must be other treatment options! Aren’t there some experimental drugs out there? I have beaten this cancer twice before. Are you saying that I can’t beat it again?”

No one can ever know with absolute certainty whether my patient’s newly recurrent cancer might miraculously disappear with one more treatment. His recurrence, however, has developed very quickly and is growing very rapidly. New cancer nodules are developing weekly. I have never seen a patient with a cancer this aggressive have a meaningful, sustained response to further treatment. The research literature confirms my impression.

It is always difficult to know what to recommend. Although “no further treatment” is always an alternative, I routinely run through all of the options, reviewing whatever is available, and hoping that we land on the combination that offers that improbable, one-in-a-thousand cure. However unlikely, we sometimes set up appointments and hope for the best.

Today, though, my sense is that it is time to focus on new goals.

The decision not to pursue more studies and more treatment can be very, very difficult. Surgeon and journalist Atul Gawande in an essay in The New Yorker entitled “Letting Go,” writes about how difficult it can be for physicians and patients to halt cancer treatment as the end of life draws near. The dilemma, he concludes, “arises from a still unresolved argument about what the function of medicine really is — what, in other words, we should and should not be paying for doctors to do.” In Gawande’s view, the profession should equip and supply doctors and nurses “who are willing to have the hard discussions and say what they have seen …”

Article continues at KevinMD.com
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Andrew Lopez, RN
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Sunday, December 19, 2010

Death in a hospital is not always comfortable, KevinMD.com

In America, too many people die in the hospital.

I don’t mean that they die due to medical error or incompetence, though that’s always a hot topic of discussion amongst doctors, researchers, administrators, and regulators.

What I mean is that if you ask most people, they say they’d rather die at home, surrounded by their loved ones, drifting off to sleep painlessly after having had last rites administered (feel free to plug in your religious/atheistic ritual of choice here).

Why, then, do so many who want this type of death instead die medically, here in the hospital, undergoing painful treatment and the deprivations and degradations of medical care?

The answer has both simple and complex aspects. But I’ll start by sharing something that most medical professionals believe:

When my time comes, the last place I want to be is in the hospital. Don’t get me wrong–I like GlassHospital–it’s a good place to work, teach, and learn. But when the grim reaper is calling my name, I want to be as far away from here as I can.

No IVs. No needle sticks to test my blood. No waking me up to check vital signs every shift. No hospital food. No fluorescent lights.

No feeding tubes; no bladder catheters (ouch!); for Heaven’s sake, no breathing machines (‘mechanical ventilators’).

Click on the link above for the full article

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The cost of keeping the terminally ill alive, KevinMD.com

Last year, Medicare paid $55 billion just for doctor and hospital bills during the last two months of patients’ lives.

And it has been estimated that 20 to 30 percent of these medical expenses may have had no meaningful impact. Most of the bills are paid for by the federal government with few or no questions asked. This statistic is from a 60 Minutes story on “The Cost of Dying” and is one reason our healthcare system is in trouble.

Modern medicine has become so good at keeping the terminally ill alive by treating the complications of underlying disease that the inevitable process of dying has become much harder and is often prolonged unnecessarily.  The way we set up the system right now, primary care physicians don’t have time to spend an hour with you, see how you respond, if they wanted to adjust your medication. So, the easiest thing for everybody up the stream is to admit you to the hospital. And once someone is admitted to the hospital they’re likely to be seen by a dozen or more specialists who will conduct all kinds of tests, whether they’re absolutely essential or not

Click on the link above for the full article

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Andrew Lopez, RN
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Wednesday, December 15, 2010

Cancer patients die too often in hospitals, study says - The Boston Globe

Researchers at the Dartmouth Atlas Project in Lebanon, N.H., analyzed the records of 235,821 Medicare patients ages 65 and older who died between 2003 and 2007. Overall, the researchers found that one-third of patients spent their last days in hospitals and intensive-care units. But there was a big range. At one end was Manhattan, where 46.7 percent died in the hospital. In contrast, 7 percent of cancer patients died in the hospital in Mason City, Iowa.

While chemotherapy and other aggressive procedures can prolong life and enable some cancer patients to return home and to work, studies have shown that these treatments have little or no value for frail elderly patients and those with advanced cancer. But 6 percent of patients received chemotherapy in their last two weeks of life, and the rate was much higher — more than 10 percent — in some places, the researchers found.

Similarly, more than 18 percent of cancer patients were placed on a feeding tube or received cardiopulmonary resuscitation in their last two weeks of life in Manhattan, compared with less than 4 percent in Minneapolis.

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Thursday, December 2, 2010

Facing Cancer, Sharing Laughter, Theresa Brown, RN

It’s the rare patient who copes with the stress of cancer by being a comedian, but a few people do. I have always found these patients not only funny, but fascinating.

One patient, a middle-aged woman, very thin, with an elfin face, got bad news on morning rounds. With the medical team at her bedside, she gestured toward the physician, then looked at Todd, her nurse for that shift, and asked in an innocent tone, “Does he know about our baby?”

Theresa BrownJeff Swensen for The New York Times Theresa Brown, R.N.

Todd said he turned every possible shade of red, but it was the kind of comment we’d all come to expect from this sardonic patient. She told us that she wanted her tombstone simply to list all the men with whom she’d ever been intimate. When one particularly somber doctor made his rounds, she scolded him for failing to order her a nightly martini.

We don’t need Freud to point out the unconscious desire expressed by this spirited middle-aged woman, who, faced with her own mortality, joked that she was still a sexually active party girl.

Another patient managed to find his own dark sense of humor in the midst of a dreadful chemotherapy session. The particular drug he needed required that I sit in the room and slowly inject it into his intravenous line. We call it “pushing chemo” because the drug comes in huge syringes that we use to literally push chemo into the patient’s veins. It takes about 20 minutes to get all the drug in, and during the process I was swathed in special blue plastic gowns that covered me from head to toe, and two layers of thick blue plastic gloves, to protect myself from this toxic drug that can blister skin.

Not only was the patient completely unprotected, but I was shooting the drug right into his veins. That paradox was not lost on him, and he called the chemotherapy “poison.” To heighten the sense of irony, the drug resembles orange soda in color and consistency, but all the checks and double-checks we go through before administering it show it is not that sweet drink from my childhood.

The patient had a female friend visiting, and they were watching a television program about a white supremacist group. While I sat there, pushing the chemo into his veins, he started riffing on how he was the only African-American member of the group. It wasn’t so much what he said as how he said it, and he had me laughing so hard I almost cried. It was, of course, an unsettling topic about which to joke, but maybe that’s why he chose it, venturing into forbidden humor as a way to cope with the unsettling circumstances of his treatment.

I remember another patient, a union organizer, who was hospitalized for treatment during the months just prior to the 2008 presidential election. I had evening shift that day, and the patient’s frustration grew as he watched coverage of the campaign on television. He saw the election as potentially historic, and wanted to be out campaigning. Instead, his cancer kept him stuck in a hospital bed.

He started telling a series of off-color jokes that I won’t repeat. I was busy caring for patients, but while I was out of the room he would think up a joke for me, and then tell me the joke the next time I came in. Each time the joke would be more outrageous, and each time he would say, “I really cleaned that one up for you.”

I suppose I should have been offended, but I wasn’t. I’ve never been in the hospital with cancer, but I’m pretty sure I would find it exhausting and terrifying. As coping strategies go, I could handle his racy humor just fine.

At the end of James Thurber’s short novel “The 13 Clocks,” a prince and princess have achieved a fairy-tale happy ending. They are advised to “Remember laughter. You’ll need it even in the blessed isles of Ever After.”

And that is what I like to remember from caring for these patients — the laughter. A patient and a nurse, sharing some laughs, lifting for a few hours the dark cloud created by disease.

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Monday, November 22, 2010

Veterans: Traumas resurface at end-of-life - UPI.com

U.S. researchers have tailored a program to help veterans whose traumas resurface at end-of-life.

Researchers led by Dr. Joshua Hauser of Northwestern University Feinberg School of Medicine in Chicago and Dr. Amos Bailey of the University of Alabama at Birmingham have developed a program they say is tailored to meet veterans' end-of-life needs.

"Many veterans, at the end of their lives, struggle with issues related to a traumatic event they had during their time in service," Bailey says in a statement. "They may have had a physical or emotional disability related to their time in service."

In addition to dealing with battle experiences, the new program -- Education on Palliative and End-of-Life Care for Veterans Project -- addresses sexual trauma and substance abuse during service, as well as how the particular war in which a veteran served affects both emotional and physical care, and other issues.

"Because these war memories come up more frequently near the end of life, palliative care providers need to be alert for these issues," Hauser says. "We want to show healthcare professionals how someone's individual war memories come up and how those can be talked about."

The program, which began in October, is scheduled to be introduced in 170 Veterans Administration Medical Centers around the country during the next 12 months.

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Thursday, October 7, 2010

Death, Dying, End of Life, Hospice, Inspirational Poems, Touching Stories

Death, Dying, End of Life, Hospice, Inspirational Poems, Touching Stories:"Occasionally, we are graced with the presence of an earth bound Angel. They are unable to stay with us for long, but while they do, they bring unprecedented joy and happiness to all they touch."
http://www.inspirationalnursing.com/inspiration/categories.death.dying.end.of.life.hospice.htm



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Sincerely,

Andrew Lopez, RN
Nursefriendly, Inc. A New Jersey Corporation.
38 Tattersall Drive, Mantua New Jersey 08051
http://www.nursefriendly.com info@nursefriendly.com ICQ #6116137, Facebook/Skype/Twitter-nursefriendly
856-415-9617, (fax) 415-9618

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