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Sunday, March 13, 2011

Anticipatory Grief | Alzheimer's, Dementia & the Stages of Grieving

By Paula Spencer, Caring.com senior editor

What is anticipatory grief?
Anticipatory grief is the emotional pain of losing a loved one, felt in advance of the person's death. It's a common phenomenon among those who care for the terminally ill.
It may be experienced at any time by any one connected to someone with Alzheimer's, but it's especially common at the middle and late stages of the disease.
Why Alzheimer's caregivers are vulnerable to anticipatory grief
Good-byes are always painful, and Alzheimer's is the ultimate "long good-bye." Anticipatory grief is rampant, and perhaps inevitable, among Alzheimer's caregivers because of the slow, progressive, and incurable nature of the disease. University of Indianapolis researchers asked more than 400 caregivers the open-ended question, "What would you say is the biggest barrier you have faced as a caregiver?" The majority -- more than 80 percent -- referred to the loss of the person they used to know.
The friends and family of someone with dementia experience two difficult psychological states at once:
Anticipatory grief, coping with the very real feelings of loss for someone who is still alive
Ambiguous loss, interacting with someone who's not fully present socially or psychologically

via caring.com

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Saturday, March 12, 2011

Sending Out An Elder-Care SOS | cdaamerica

A growing number of websites, with names like CareCentral and Lotsa Helping Hands, are catering to such families. “It is the fastest-growing segment of our business,” says Jay Drayer, CEO of CareFlash, based in Austin, Texas, which services families with many types of health issues.

Like mainstream social-networking services, these sites make it possible for a caregiver to communicate with many people at once. Most allow families to post messages, blogs and photographs—and receive feedback from a supportive community. The services typically promise privacy and notify members when new information is added.

via cdaamerica.wordpress.com

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Monday, February 28, 2011

Medical News: AAN: Third Language a Charm in Warding Off Dementia - in Meeting Coverage, AAN from MedPage Today

Speak English? Parlez français? Habla español?
Those who can say yes, oui, or sí to all three questions are significantly more likely to avoid cognitive problems late in life than those who speak only two languages, according to Magali Perquin, PhD, of the Public Research Center for Health in Luxembourg, and colleagues.
Moreover, the effect appears to add up -- more languages equal a lower risk of cognitive impairment, Perquin and colleagues reported in a study to be presented at the American Academy of Neurology meeting in Honolulu in April.
Action Points
Note that this study was to be published as an abstract and presented at a conference. These data and conclusions should be considered to be preliminary until published in a peer-reviewed journal.
Note that in this study multilingualism was protective against cognitive impairment in seniors, and the more languages spoken the better.
Point out that this study cannot determine causality.

"It appears speaking more than two languages has a protective effect on memory in seniors who practice foreign languages over their lifetime or at the time of the study," Perquin said in a statement.

The findings, from a study of 230 people with an average age of 73, fit into the context of a growing body of literature that suggests a so-called "cognitive reserve" -- developed by intellectual activities -- protects against dementia.

via medpagetoday.com

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Creative Storytelling Intervention Helps Dementia Patients | National Nursing News

Participation in a creative storytelling intervention improves communications skills and demeanor in people with dementia, according to a study by University of Missouri researchers.
The program, TimeSlips, encourages participants to use their imaginations to create short stories as a group. Participation does not require factual recall, but rather responses to humorous images presented by facilitators. The facilitators record the responses and read narratives to further develop or conclude the stories.
“TimeSlips provides rich, engaging opportunities for persons with dementia to interact with others while exercising their individual strengths,” said Lorraine Phillips, RN, PhD, FNP-BC, assistant professor in the Sinclair School of Nursing.

via news.nurse.com

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Tuesday, January 18, 2011

Don't Put Off Talking About The Inevitable: Care At Life's End : Shots - Health News Blog : NPR

With no end in sight to the controversy about whether doctors should be paid to discuss end-of-life options with patients, we thought now was as good a time as any to review the possibilities for care before you die.

Only about a quarter of adults have advance directives in place. The term refers to two types of documents: a living will that instructs people what medical measures to take, if any, to prolong your life, and a health care power of attorney that designates someone to make medical decisions for you if you can't. States call these documents by different names, but their functions are similar.

On the relatively infrequent occasions when people do sign advance directive documents, they're usually thinking about what they would want in a crisis: a heart attack, say, or routine surgery that goes terribly wrong. Most of us don't think about the long, slow decline that may occur with Alzheimer’s disease, for example, that robs people just as surely of their ability to make choices as a medical emergency.

via npr.org

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Thursday, November 18, 2010

Mass. aims to cut drug overuse for dementia - The Boston Globe

State regulators and the Massachusetts nursing home industry are launching a campaign today to reduce the inappropriate use of antipsychotic medications for residents with dementia — a practice that endangers lives and is more common here than in most other states.

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During the next year, a team of specialists will identify nursing homes with successful methods for avoiding overuse of antipsychotics and determine which homes need help cutting back. Nursing home staff will be taught how to deal with aggressive and difficult behaviors, often displayed by dementia patients, without resorting to antipsychotics to sedate them.
In 2009, 22 percent of Massachusetts nursing home residents who received antipsychotic medications did not have a diagnosis for which the drugs were recommended — the 12th highest rate of inappropriate antipsychotic use in the nation, the Globe re ported earlier this year.
Twice in the past five years, federal regulators have issued nationwide alerts about troubling and sometimes fatal side effects when antipsychotics are taken by people with dementia, often Alzheimer’s patients.
Specialists say that understaffing sometimes prompts overuse of these medications to help control dementia patients’ behavior, but that inappropriate use can also be traced to lack of training in alternative approaches.
“There is a knowledge gap between the front-line workers — the nurses — and the black-box warnings on these medications,’’ said Laurie Herndon, a geriatric nurse practitioner who is leading the initiative for Massachusetts Senior Care, the trade group representing the state’s 430 nursing homes. A black-box warning is the most serious type of caution used in prescription drug labeling.
“We wanted to avoid talking at them, and instead provide educational material they can use,’’ Herndon said.
Campaign details will be unveiled at the association’s annual meeting today in Worcester, which is expected to draw about 900 people.
Alice Bonner, the state’s top nursing home regulator, said she appointed a task force to study the overuse of antipsychotics in nursing homes and develop alternative approaches after the Globe highlighted the problem in Massachusetts earlier this year. The task force includes nursing home physicians, nurses, social workers, and pharmacists, along with elder advocates, researchers, and state surveyors who monitor the quality of the facilities.
Bonner, director of the Bureau of Health Care Safety and Quality in the Department of Public Health, said the state, given its budget problems, does not have new resources to devote to the campaign, but is working with legislators and the Patrick administration to get new funding in the next state budget. The trade association intends to apply for grants from nonprofit groups to fund the initiative.
“No one is going to plunk a whole lot of money in our laps,’’ Herndon said, “but that shouldn’t stop us.’’

Bonner said that the task force has already identified low-cost approaches used by some nursing homes. One approach involves more careful screening of patients when they are admitted, which includes gathering more detailed information from families about the patient’s personality before the onset of illness. This, Bonner said, helps staffers tailor care and activities to each patient.
“They get a good sense of who a person was before they began to suffer with dementia, what kinds of things they like to do, and what kinds of things their family can tell us makes them calm or gets them engaged,’’ Bonner said.
“When you see a nursing home with a low rate of antipsychotics, very often you will see these programs,’’ she said.
Bonner also said that nursing homes that give workers consistent schedules that allow them to work with the same patients have also been successful.
“That helps reduce difficult behaviors with patients with dementia because staff knows the patients so well, they pick up on early signs of trouble and prevent a catastrophic event, so they can intervene early,’’ she said. Consistent schedules have the side benefit of helping nursing homes retain their workers longer, Bonner said. “Once this is in place, it turns out it is less expensive because staff turnover is expensive,’’ she said.
The education campaign will draw on the work of Dr. Susan Wehry, a geriatric psychiatrist and associate professor of psychiatry at the University of Vermont College of Medicine. Wehry recently concluded an intensive, nine-month pilot project in four Vermont nursing homes that taught all staffers, from housekeepers to medical directors, alternative approaches, such as using music and massage, to manage difficult patient behaviors.
The program, she said, helped identify which alternatives work, which don’t, and how challenging the mission can be.
Wehry is still analyzing the results but said preliminary findings showed that in one of the homes where the administrator made all of the training sessions mandatory for staff, antipsychotic use was dramatically reduced. A third of the patients with dementia had been prescribed antipsychotics before the program, and not one was on them by the end, she said.
“They were much improved in terms of staff-resident interactions and level of alertness,’’ Wehry said. “And they looked happier.’’
Data from another home that did not make all of the training mandatory showed no change in the number of dementia patients given the medications. Wehry said a more troubling trend also emerged there — one of the physicians switched from giving antipsychotics to prescribing antianxiety medications.
“If all we do is shift the burden, then all we have done is create a different set of problems,’’ Wehry said. “Our goal is not to just reduce our reliance on antipsychotics, but to change [patient] behaviors.’’
Kay Lazar can be reached at klazar@globe.com

via boston.com

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Friday, November 12, 2010

ScienceDaily: Alzheimer's Research News

Alzheimer's Disease: New Study Shows How Amyloid Beta Disrupts One of the Brain's Anti-Oxidant Proteins, Points Way to Protect It

Simple Blood Test May Diagnose Deadly Niemann-Pick Type C Disease

Vulnerable Brain Region May Be Central to Progression of Alzheimer's Disease

PET Scans Reveal Estrogen-Producing Hotspots in Human Brain

via sciencedaily.com

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Friday, August 24, 2007

American Academy of Child and Adolescent Psychiatry

Healthcare Associations, Organizations, http://www.4nursing.com/healthcare

American Academy of Child and Adolescent Psychiatry:"Between 7 and 12 Million American youth suffer from mental, behavioral, or developmental disorders at any given time. The AACAP (American Academy of Child and Adolescent Psychiatry) is the leading national professional medical association dedicated to treating and improving the quality of life for children, adolescents, and families affected by these disorders. The AACAP, a 501(c)(3) non-profit organization, was established in 1953. It is a membership based organization, composed of over 6,500 child and adolescent psychiatrists and other interested physicians. Its members actively research, evaluate, diagnose, and treat psychiatric disorders and pride themselves on giving direction to and responding quickly to new developments in addressing the health care needs of children and their families."
The American Academy of Child and Adolescent Psychiatry
3615 Wisconsin Ave., N.W., Washington, D.C. 20016-3007
voice: 202-966-7300 fax: 202-966-2891
http://www.aacap.org/

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Canadian Associations, Cancer, Oncology, Malignancy, Tumors:
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Intravenous, Infusion Therapy Professional Associations, http://www.4nursing.com/intravenous

Medical Associations, Cancer, Oncology, Malignancy, Tumors, http://www.4nursing.com/medical

Renal, Kidney Associations, http://www.4nursing.com/renal

Respiratory Associations, http://www.4nursing.com/respiratory

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Labels: alzheimers, alzheimers disease, assocations, dementia, geriatrics, Healthcare, Medical Resources, nursing homes, patient support

Alzheimer's Society - about dementia

Healthcare Associations, Organizations, http://www.4nursing.com/healthcare
Alzheimer's Society - about dementia...
The Alzheimer's Society is the leading UK care and research charity for people with dementia, their families and carers. This site is frequently updated with leading information appropriate to the Soc...
http://www.alzheimers.org.uk
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National, State Nurse (Nursing) Organizations, http://www.4nursing.com/associations/
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+Associations_65, Addictions, Drug and Substance Abuse on The Nursefriendly: http://www.nursefriendly.com/addictions/
Associations_104, AIDS & HIV Acquired Immunodeficiency Syndrome, AIDS & HIV Resources, http://www.4nursing.com/aids/
Associations_41, Blood Banks, Blood Donation, Apheresis Links, http://www.4nursing.com/blood/
Associations_44, Pregnancy, Obstetrics, & Gynecology (OB-GYN), Direct (Bedside Nursing) Patient Care, http://www.4nursing.com/obgyn
Canadian Associations, Cancer, Oncology, Malignancy, Tumors:
http://www.4nursing.com/canadian
Cardiac Associations, Cardiac & Cardiology Resources, http://www.4nursing.com/cardiac
Intravenous, Infusion Therapy Professional Associations, http://www.4nursing.com/intravenous
Medical Associations, Cancer, Oncology, Malignancy, Tumors, http://www.4nursing.com/medical
Renal, Kidney Associations, http://www.4nursing.com/renal
Respiratory Associations, http://www.4nursing.com/respiratory
******************************************************

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Andrew Lopez, RN
Nursefriendly, Inc. A New Jersey Corporation.
38 Tattersall Drive, Mantua New Jersey 08051
http://www.4nursing.com info@nursefriendly.com ICQ #6116137, AOL "nursefriendly"
856-415-9617, (fax) 415-9618

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Posted by Andrew Lopez, RN at 2:16 PM No comments:
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Labels: alzheimers, alzheimers disease, assocations, dementia, geriatrics, Healthcare, Medical Resources, nursing homes, patient support

Alzheimer's Disease Education and Referral (ADEAR) Center

Healthcare Associations, Organizations, http://www.4nursing.com/healthcare
Alzheimer's Disease Education and Referral (ADEAR) Center:"The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institutes of Health under the U.S. Department of Health and Human Services."
http://www.alzheimers.org/
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Associations_22, Abuse, Abusive Behaviors, Abused, Direct Patient Care, http://www.nursefriendly.com/abuse/
+Associations_65, Addictions, Drug and Substance Abuse on The Nursefriendly: http://www.nursefriendly.com/addictions/
Associations_104, AIDS & HIV Acquired Immunodeficiency Syndrome, AIDS & HIV Resources, http://www.4nursing.com/aids/
Associations_41, Blood Banks, Blood Donation, Apheresis Links, http://www.4nursing.com/blood/
Associations_44, Pregnancy, Obstetrics, & Gynecology (OB-GYN), Direct (Bedside Nursing) Patient Care, http://www.4nursing.com/obgyn
Canadian Associations, Cancer, Oncology, Malignancy, Tumors:
http://www.4nursing.com/canadian
Cardiac Associations, Cardiac & Cardiology Resources, http://www.4nursing.com/cardiac
Intravenous, Infusion Therapy Professional Associations, http://www.4nursing.com/intravenous
Medical Associations, Cancer, Oncology, Malignancy, Tumors, http://www.4nursing.com/medical
Renal, Kidney Associations, http://www.4nursing.com/renal
Respiratory Associations, http://www.4nursing.com/respiratory
******************************************************

Sincerely,

Andrew Lopez, RN
Nursefriendly, Inc. A New Jersey Corporation.
38 Tattersall Drive, Mantua New Jersey 08051
http://www.4nursing.com info@nursefriendly.com ICQ #6116137, AOL "nursefriendly"
856-415-9617, (fax) 415-9618

150,000 + Nurse-Reviewed & Approved Nursing Links

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Posted by Andrew Lopez, RN at 1:55 PM No comments:
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Labels: alzheimers, alzheimers disease, assocations, dementia, geriatrics, Healthcare, Medical Resources, nursing homes, patient support

Alzheimer's Association

Alzheimer's Association:"The Alzheimer's Association is your source for information, support and assistance on issues related to Alzheimer's disease.
The Alzheimer's Association National Headquarters, 919 N. Michigan Ave., Suite 1000, Chicago, IL 60611-1676
Call us at (800) 272-3900
http://www.alz.org/

Alzheimer's Association Central Maryland Chapter:"Services • How to Help • Local Research • Activities • News & Info Table of Contents • About Us • Links • Guestbook • E-mail
1850 York Road, Suite D • Timonium, MD 21093-5142 1-410-561-9099 • 1-800-443-CARE (Outside of Baltimore)
http://www.alzcmd.org/
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Alzheimer's Association, Northern Virginia Chapter...
Alzheimer's Association, Northern Virginia Chapter provides programs services for families caregivers, funds research, and educates the general public, health professionals and governments about Alzhe...
http://www.alz-nca.org
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Category: Healthcare Associations, Organizations, http://www.4nursing.com/healthcare
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See also:
National, State Nurse (Nursing) Organizations, http://www.4nursing.com/associations/
******************************************************
Associations_22, Abuse, Abusive Behaviors, Abused, Direct Patient Care, http://www.nursefriendly.com/abuse/
+Associations_65, Addictions, Drug and Substance Abuse on The Nursefriendly: http://www.nursefriendly.com/addictions/
Associations_104, AIDS & HIV Acquired Immunodeficiency Syndrome, AIDS & HIV Resources, http://www.4nursing.com/aids/
Associations_41, Blood Banks, Blood Donation, Apheresis Links, http://www.4nursing.com/blood/
Associations_44, Pregnancy, Obstetrics, & Gynecology (OB-GYN), Direct (Bedside Nursing) Patient Care, http://www.4nursing.com/obgyn
Canadian Associations, Cancer, Oncology, Malignancy, Tumors:
http://www.4nursing.com/canadian
Cardiac Associations, Cardiac & Cardiology Resources, http://www.4nursing.com/cardiac
Intravenous, Infusion Therapy Professional Associations, http://www.4nursing.com/intravenous
Medical Associations, Cancer, Oncology, Malignancy, Tumors, http://www.4nursing.com/medical
Renal, Kidney Associations, http://www.4nursing.com/renal
Respiratory Associations, http://www.4nursing.com/respiratory
******************************************************

Sincerely,

Andrew Lopez, RN
Nursefriendly, Inc. A New Jersey Corporation.
38 Tattersall Drive, Mantua New Jersey 08051
http://www.4nursing.com info@nursefriendly.com ICQ #6116137, AOL "nursefriendly"
856-415-9617, (fax) 415-9618

150,000 + Nurse-Reviewed & Approved Nursing Links

http://www.4studentnurses.com
http://www.4travelnursing.com
http://www.lopez1.com
http://www.nursinga2z.com
http://www.nursingdiscussions.com
http://www.nursinghumor.com
http://www.nursefriendly.com
http://www.nursingentrepreneurs.com
http://www.nursingexperts.com

Posted by Andrew Lopez, RN at 1:49 PM No comments:
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Labels: alzheimers, alzheimers disease, associations, caregivers, dementia, geriatrics, Healthcare, nursing homes, old age, organizations, patient support

Nursefriendly.com

Sunday, March 13, 2011

Anticipatory Grief | Alzheimer's, Dementia & the Stages of Grieving

By Paula Spencer, Caring.com senior editor

What is anticipatory grief?

Why Alzheimer's caregivers are vulnerable to anticipatory grief

Saturday, March 12, 2011

Sending Out An Elder-Care SOS | cdaamerica

Monday, February 28, 2011

Medical News: AAN: Third Language a Charm in Warding Off Dementia - in Meeting Coverage, AAN from MedPage Today

Creative Storytelling Intervention Helps Dementia Patients | National Nursing News

Tuesday, January 18, 2011

Don't Put Off Talking About The Inevitable: Care At Life's End : Shots - Health News Blog : NPR

Thursday, November 18, 2010

Mass. aims to cut drug overuse for dementia - The Boston Globe

Friday, November 12, 2010

ScienceDaily: Alzheimer's Research News

Friday, August 24, 2007

American Academy of Child and Adolescent Psychiatry

Alzheimer's Society - about dementia

Alzheimer's Disease Education and Referral (ADEAR) Center

Alzheimer's Association

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